Get Real

Life with lots of kids can be hard. Life with a child with Down syndrome can be hard. Life with five kids with Down syndrome can be downright suffocating. This isn’t a pity party. And there’s no need for anyone to say, “You brought it on yourselves,” or, “You should have thought about that before you adopted those kids.”

The quirks these kids have can really get to me. The noise they make can make me feel like I’m losing my mind (that is not over-stated). The stares we get (or they get) when we leave the house – even going to church – get on my nerves.

The difficulties they have because they came from hard places can be perplexing, frustrating, and sometimes completely terrifying. We don’t know what they have been through. They can’t tell us. We don’t know what triggers the traumatic flashbacks that send them into hysterics nor do we know how to stop it. We don’t know why sometimes one of them gets violent toward the only people in the world who love him.

I mentioned, already, that this isn’t a pity party or a gripe session, right? It’s just real life. It’s okay – it could be worse. After all, they could have had their sweet lives cut short without ever knowing what it felt like to be cuddled and sung to. Or to have enough food that they didn’t feel constant hunger.

It’s real life.

Driving to church is always a challenge for me. Having everyone in one van (that’s a bit crowded) is difficult. There’s something about their noises that just get’s me in my core and I can barely take it. In a confined space, it’s more than I can withstand. That’s my own little quirk, I guess. But to have them in the van, each making “their” noise sucks any patience I have right out of my body. Every ounce. This morning was no different. And to top it off, Ethan woke up on the wrong side of the bed – or something. His life has probably been the worst of any of them, yet we don’t know exactly what that means. He has the most trauma, though, and it causes him to act out the most. So all combined, I was sure glad to get to church this morning in one piece and with a little bit of sanity left.

But most of that frustration melted away when I started practicing for the service. Ethan calmed down and started his leg swinging (kind of a backwards rocking motion he does with his legs) and Matthew just stared at me and smiled and started his rocking (it’s what he does when he’s really happy). Eliana just smiled at me. Eli did his sideways rocking. Micah was at the back of the room guarding the broom and dust pan – I don’t know why, except that he loves to sweep after fellowship time and maybe he thinks someone is going to steal that job from him, but as far as I’m concerned, it’s his for life. It occurred to me, however, that these kids were worshiping in their own way. I suppose it could be embarrassing because of the way they “look” when they are doing these things. But to me – today – it wasn’t.

(It looks like Micah had already abandoned the broom.) But this right here is worshipping. Matthew doesn’t worship like anyone else I’ve ever known. But it’s worship. It’s joy before the Lord. I have no doubt he’d be singing along if he could.

All nine of our kids teach us lessons every day. Sometimes they are good lessons. Sometimes they are hard lessons. But they are always valuable ones.

Blessed be the Name of Our Great God.

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Chris Malone

It is a joy to serve our Lord with the bride of my youth, Mary, and our children. Our nine kids are not all living at home anymore. One has already completed university and has started her career. One is finishing his master's degree and will start his career soon. One is completing her freshman year at university. That leaves six at home. One of those completes high school this year. Amazing since Mary and I are only 30 years old (at least in our minds).

3 thoughts on “Get Real”

  1. God Bless your Hearts, Malones. I’d like to say “this too shall pass”, but I don’t know… You will certainly have a huge castle in heaven; you’re going to need it. Lots of Love to all of you.

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